Selby Times | November 27, 2010
A WHITLEY family has launched a fund-raising campaign for their 29-month-old daughter who suffers from a rare genetic disease that means she will never walk, or even stand unsupported.
Little Beatrice Howden has type two Spinal Muscular Atrophy, a condition that stops signals from the brain getting to the muscles, causing them to become weak and wasted.
Children with type two SMA can usually sit unsupported but can’t stand or walk. A child can be affected only if both parents carry a faulty gene.
“It has been very hard coming to terms with the fact Beatrice will never walk and could have other problems, such as breathing difficulties,” said dad Andrew. “But she seems to have compensated for this by being a particularly bright and cheerful child. She surprises us on a daily basis with the things she can do.”
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