Family’s plea for muscle disease specialist
uTV | January 13, 2011
An appeal to save Northern Ireland’s only muscle disease specialist, whose “life-changing” role is said to be under threat because of a lack of funding, has been launched by a Downpatrick family.
For the past 31 years a specialist care advisor on muscle disease has been in place here, offering emotional and practical support to up to 2,000 affected families.
However funding for the service ends in March and Michaela Hollywood, who suffers from Spinal Muscular Atrophy and also lost her sister to the condition 14 years ago, said time is running out for NHS leaders to commit to keeping the post open.
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