Family raising funds to help Maddison’s rare condition
this is nottingham | March 21, 2011 | By Dominic Howell
A MOTHER from East Leake is planning a birthday fun day to raise money for her daughter who is defying all medical expectations.
When doctors diagnosed Maddison Sherwood with a very rare muscular disease, which attacks her ability to breathe, they said she would never sit up unaided – but she has.
They said she would never be able to breathe for more than a minute without the aid of a ventilator – but she’s now managed 30 minutes without its help.
“Doctors just can’t work it out,” said mum Lidia Sherwood, of St Mary’s Crescent.
“She’s doing so well and I’m so proud.”
Maddison was diagnosed with spinal muscular atrophy with respiratory distress (SMARD) when she was born and spent the first 11 months of her life in the Queen’s Medical Centre.
There have only been two other recorded cases of SMARD in England and just 60 worldwide.
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