Fund-raising event aimed to help pioneering research into illness
The Star | April 27, 2011
A DOTING dad whose son has a muscle-wasting disease for which there is no effective treatment or cure is raising cash for pioneering research at a world class institute in Sheffield.
Mohammed Amin’s son Saeed was diagnosed with spinal muscular atrophy or SMA when he was two.
Tthe degenerative neurological condition prevents nerve cells in the spinal cord functioning properly, causing muscles to weaken and eventually stop working.
The prognosis for patients with the disease – similar to motor neurone disease in adults – is not good, with some given a life expectancy of only two years.
But 14-year-old Saeed has battled bravely through the condition – resorting to a wheelchair full-time only three years ago.
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