Pranav and the Court Decision: Anti-Stem Cell Lawsuit Still Threatens Sick
Huffington Post | May 2, 2011 | By Don C. Reed
“He is right here,” said Pranav’s mother, in her lilting Indian accent; “would you like to speak to him?”
For a moment I was actually afraid; I don’t know why.
Pranav had Spinal Muscular Atrophy (SMA) a disease like a slow spinal cord injury. Like the paralysis which afflicts my son Roman Reed, SMA is not “catching”, and in any case we were on the telephone.
“Hello,” said a surprisingly deep voice, very dignified. I had a sudden thought — he sounded like a politician, a good one, somebody who would use the power of government to help people.
We talked about Disneyland and Elmo, both of which he strongly approved.
But the conversation was tiring for him, and we soon said goodbye.
He was three years old.
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