Friends Raising Money For Inspirational Family
CBS Atlanta | May 8, 2011 | By Katie Brace
At 1 1/2 years old, Skylar Jones lets you know what she likes with her eyes. She has a rare genetic disease called Spinal Muscular Atrophy or SMA.
Kyle Jones, father, said, “The strongest she was, was when she was born.”
Skylar’s muscles are basically wasting away and there’s no medical miracle to change that.
Ashley Jones, mother, said, “Right now she breathes with her diaphragm because her muscles around her lungs don’t work.”
It means either Ashley or Kyle can never be far away, especially if she’s off the breathing machine.
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