Brighton mother takes health campaign to Prime Minister
The Argus | June 24, 2011 | By Siobhan Ryan
The mother of a little boy living with a rare illness has written to Prime Minister David Cameron to protest at proposals to close a children’s heart unit.
Susanna Nicholls says getting rid of the service would cut off a vital lifeline for her five-year-old son Daniel.
Daniel suffers from spinal muscular atrophy which has affected his muscles and left him unable to crawl, walk or even sit up unaided.
He needs a machine at night to help him breathe and has been in and out of hospital all his life.
Daniel, from Patcham, Brighton, has been treated by the specialist respiratory team at the Royal Brompton Hospital in London on many occasions and staff saved his life when one of his lungs partially collapsed.
Mrs Nicholls, 30, says that if the Royal Brompton’s heart unit closes, it will have a knock-on effect on other areas, such as the respiratory unit.
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