Drugs trial hope for brave Ruby
Worcester News | July 9, 2011 | By Richard Vernalls
A BRAVE young girl battling a rare genetic condition has started a cutting-edge medical trial which could offer hope of a brighter future to thousands of sufferers around the world.
Five-year-old Ruby Crowther has had more hurdles than most youngsters of her age to overcome.
The bright little girl, who goes to Rushwick CE Primary School, Worcester, has a degenerative nerve condition called type-2 spinal muscular atrophy (SMA), which causes the nerves sending messages to her muscles to die off.
We previously reported how Ruby needs a specially adapted wheelchair because she cannot walk and has limited use of her arms.
However, doctors have put her on a new trial involving a new drug called Olesoxime which is supposed to regenerate the nerves damaged by her condition.
She is one of only a handful of UK patients on the year-long trial. There are regular medical checks at Birmingham’s Heartlands Hospital where precise measurements are taken, to guage progress.
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