One Local Mom Supports Fundraiser Walk For Two Diseases
KPTM (Fox 42) | August 8, 2011 | By Meghan McRoberts
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One local mom, Jen Peters, is doing what she can to find a cure for her daughter’s disease.
Ella was diagnosed with Spinal Muscular Atrophy 3 days after her first birthday. It is the number one genetic killer of children under 2 years old.
Peters says Ella is already very independent. Peters describes “even though she can’t do all the things that normal kids do she finds a way, she doesn’t always want to be helped, she’s always saying go away, go away, let me do it.” She takes Ella to Physical Therapy every Monday at Children’s Hospital to slow the progression of the disease, and maintain Ella’s strength.
Peters says Ella may never be able to crawl, or walk, but she hasn’t lost all hope. “She can still sit, she has no problems with feeding or breathing yet, she’s just a little bit weak, so our motto is it can always be worse, so were just grateful for how well she’s doing and just keep working with her so she’s able to maintain her strength as best as she can but want to do everything possible to try to make that happen.”
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