Mum strives for awareness of Spinal Muscular Atrophy
GetReading.co.uk | December 21, 2011 | By Laura McCardle
A mum whose baby daughter died shortly after she was diagnosed with a rare condition wants to raise awareness of it and its treatment.
Donna Bevan’s daughter Nicole was just four-and-a-half months old when she lost her battle with Spinal Muscular Atrophy (SMA) at Royal Berkshire Hospital (RBH) on Saturday, October 22.
Mrs Bevan, of Hunters Hill, Burghfield Common, believes that little Nicole was failed by the RBH and that she may have lived longer if things had been done differently.
Neurologists diagnosed Nicole with SMA on Friday, September 23, and Mrs Bevan felt her husband Nick and she were told very little about the condition except that their daughter “would have 12 months give or take”.
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