Baby Ella – Battling SMA and Living the Life of a Princess

Baby Ella – Battling SMA and Living the Life of a Princess

WNDU (NBC) | February 1, 2012 | By Maureen McFadden

Sugar and spice and everything nice, according to the nursery rhyme is what little girls are made of.

And the Hunt family of Osceola would agree. Their five month old daughter, Ella Lanay is an unbelievable joy, despite the fact that she was born was a fatal genetic illness called Spinal Muscular Atrophy. Ella’s mind is normal, but she can’t move.

Like many parents, they want their first daughter to experience the joys girls do growing up, but they have to do it in the time they have.

Ella may be one of the youngest girls with a Facebook page, but that’s where her mom Erica and dad, Dan and brothers Noah and Carter post their dream list for Ella.

Erica suspected something was wrong with Ella by the time she was about ten weeks old. She just wasn’t meeting the milestones parents are used to.

Doctors first suspected a muscle condition but a trip to Riley Children’s hospital on December 20th gave them a diagnosis.

Research is ongoing, but most children with SMA don’t live past two, according to Erica. “It is a fatal disease so it will take her life. We just don’t know when.”

Click HERE or on the image below to read more…

Advertisements

One Response to Baby Ella – Battling SMA and Living the Life of a Princess

  1. Forex trading comprises approximately 80%-90% or even more, from the
    profits made by simply every one of the economic climates entirely on globe and less of
    which 10% include currency markets, large and small enterprise trade; which means Forex trading
    makes more income as compared to all the other income places mixed.
    This article will explore forex regulations in Nigeria
    and provide a short guide to what Nigerians should consider when choosing a forex broker.
    International checks, now commonly used in Forex market purchases, are synchronized with automation technology.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: