Not just a level playing field

January 24, 2011

Not just a level playing field | January 24, 2011 | By Tristram Peters

As any of my friends would tell you, I’m addicted to sports. From the spectacle that is the All Blacks performing the haka – a sight I admire even as an ardent Wallabies supporter – to the fervour that erupts each time the Football World Cup comes around, I love it all. Well, except for golf, but that’s beside the point.

It started at a young age with me. I’m told by my dad that I watched the ’91 Rugby World Cup with him when I was one year old. I may have been more interested in sleeping and eating at the time, but I figure that’s where it all began. At a very young age, I had decided that I wanted to play sport for a career – be it rugby union, league, AFL, or football.

But my dreams were dashed by a form of muscular dystrophy; a wonderfully titled condition called Spinal Muscular Atrophy Type 2. Essentially, my muscles were slowly becoming weaker, so weak that I was soon confined to an electric wheelchair.

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Lions help Tait sleep tight

January 20, 2011

Lions help Tait sleep tight

The Northern Rivers Echo | January 21, 2011 | By Mel Carrero

The Jenkins family will finally be able to rest easy after Lions donated a bed worth $15,500 to them on Monday.

Tait Jenkins, a 14-year old boy from Modanville, suffers from spinal muscular atrophy (SMA) and has no function of his muscles from the neck down and requires to be turned each hour during sleep, leaving his parents Fiona and Royce incredibly tired and Tait very dependent on their help.

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Big jump for charity

January 12, 2011

Big jump for charity

North Shore Times | January 13, 2011 | By Sarah Coddington

A DARING sky jump for charity landed Waimon Thant-Cyn with a broken hip but she says it was all worth it.

The Pinehill resident, who uses a wheelchair, was born with a neuromuscular disease, spinal muscular atrophy.

She was not diagnosed until the age of 10 when she moved to New Zealand from Myanmar.

The condition causes loss of motor neurones within the spinal cord and as a result muscles become weak.
“I’ve always done things to the best of my ability and I’ve never used my disability as an excuse not to go for something that I really wanted,” she says.

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Bromeliad society rushes to aid

December 23, 2010

Bromeliad society rushes to aid

Coolum News | December 24, 2010

WITHIN the space of a couple of weeks, Ronda Vijsma has seen the highs and lows of human nature.

Recently thieves stole 10 one-metre high bromeliad blanchetianas from the front garden of her Mudjimba home.

To make matters worse, Ronda grows the plants to raise money for a trust fund for her three-year-old grandson, Kazi, who is confined to a wheelchair.

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Carlingford art show to raise research cash

December 10, 2010

Carlingford art show to raise research cash

Hills Shire Times | December 10, 2010 | By Vanessa Bradbury

JENNIFER Burns works as a university relationship manager for the Actuaries Department by day and allows her creative side to reign in her spare time.

This Carlingford visual artist will be hosting an art exhibition at her home on Sunday in a bid to not only showcase her talent but also raise much-needed funds for the Spinal Muscular Atrophy Association of Australia (SMA).

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No cure for Georgia

December 9, 2010

No cure for Georgia

Western Advocate | December 10, 2010 | By Jo Johnson

Georgia Jade Millwood is doing it tough. She suffers from a rare genetic condition called Spinal Muscular Atrophy (SMA) Type One.

It is a progressive degenerative disease that affects the nerves and muscles.

Infants with SMA struggle with normal bodily functions and there is a constant risk of respiratory infection and pneumonia. It cannot be cured.

The life expectancy of this condition is about one year and Georgia is 11 months old.

She has recently taken a turn for the worse and it is unlikely she will see her first Christmas.

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