Zumbathon will boost research efforts of the SMA Trust

November 17, 2011

Zumbathon will boost research efforts of the SMA Trust

Messenger | November 17, 2011

AN Altrincham couple are holding the north west’s largest ever Zumbathon event – to raise funds for research into a devastating condition that affects their baby son.

One-year-old David Dee was diagnosed in July with spinal muscular atrophy – a genetic muscle wasting condition affecting one in 6,000 children that there is currently no cure for.

David is unable to sit up or walk by himself and doctors say he will never walk.

However, there is some hope, as clinical trials by the charity the SMA Trust continue to make significant advances and a new drug is currently being tested in human trials.

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Celebrities Head Up the Battle to Fight Childhood Disease Spinal Muscular Atrophy

November 21, 2010

Celebrities Head Up the Battle to Fight Childhood Disease Spinal Muscular Atrophy

Press Release | November 21, 2010

Multi-award winning actress Keira Knightley and actor/director David Morrissey have become Patrons of the SMA Trust, a charity dedicated to finding a cure for Spinal Muscular Atrophy (SMA).