Castle Rock boy beating the odds

March 23, 2011

Castle Rock boy beating the odds

FOX (Denver) | March 23, 2011 | By Ginger Delgado

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CASTLE ROCK, Colo. — A five- year-old boy from Castle Rock with a rare genetic disorder is beating the odds, thanks to his family who won’t give up.

Reece Rubino was not supposed to live past the age of two, according to his doctors, but his parents fought to keep him alive and give him hope.  Reece was born with Spinal Muscular Atrophy or SMA.

There are different types of the disease, but Reece has the most severe — Type One — which paralyzes children from head to toe.  It’s a deadly disease for which there’s no cure.  But Reece is living, learning and defying the odds.

Click HERE or on the image below to read more…

A boy’s memory garden sows hope for other ailing kids

January 22, 2011

A boy’s memory garden sows hope for other ailing kids

Denver Post | January 22, 2011 | By Eric Eyl

Four years ago, Page Phillips and Tess Scanlon-Phillips welcomed their son, Cash Scanlon Phillips, into the world.

Four months later, they watched him die from spinal muscular atrophy, a rare genetic disease characterized by muscle atrophy and the loss of motor function.

But rather than let this tragedy destroy their family and their lives, the grieving couple decided to use the experience to help other families with sick children. On what would have been their son’s first birthday — Jan. 18, 2008 — they recruited honky-tonk rockers the Railbenders for the first Concert for Cash at the Oriental Theater, raising money to build a garden at Children’s Hospital.

Click HERE or on the image below to read more…