Back brace promised for disabled Taunton girl

December 2, 2010

Back brace promised for disabled Taunton girl

thisisthewestcountry.co.uk | December 2, 2010

HEALTH bosses have promised to urgently consider funding a vital back brace for a five-year-old disabled girl from Taunton after the County Gazette took up her case.

Alice Kemp has spinal muscular atrophy and needs a new back brace every time she outgrows her old one.

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WVC Teens Decorate Tree To Memorialize Fruit Heights Infant

November 22, 2010

WVC Teens Decorate Tree To Memorialize Fruit Heights Infant

The Salt Lake Tribune | November 22, 2010 | By Donald W. Meyers

Like most mothers, Kendra Webster thought her newborn daughter was perfect.

“Makenzie was an amazing girl,” the Fruit Heights woman recalled. “We never thought anything was wrong with her.”

But in November 2009, 4-month-old Makenzie was diagnosed with spinal muscular atrophy with respiratory distress (SMARD). The disease, like Lou Gehrig’s disease, shuts down the body.

Makenzie died on Dec. 13, 2009, a month after the diagnosis.

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