One Local Mom Supports Fundraiser Walk For Two Diseases

August 9, 2011

One Local Mom Supports Fundraiser Walk For Two Diseases

KPTM (Fox 42) | August 8, 2011 | By Meghan McRoberts

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One local mom, Jen Peters, is doing what she can to find a cure for her daughter’s disease.

Ella was diagnosed with Spinal Muscular Atrophy 3 days after her first birthday. It is the number one genetic killer of children under 2 years old.

Peters says Ella is already very independent. Peters describes “even though she can’t do all the things that normal kids do she finds a way, she doesn’t always want to be helped, she’s always saying go away, go away, let me do it.” She takes Ella to Physical Therapy every Monday at Children’s Hospital to slow the progression of the disease, and maintain Ella’s strength.

Peters says Ella may never be able to crawl, or walk, but she hasn’t lost all hope. “She can still sit, she has no problems with feeding or breathing yet, she’s just a little bit weak, so our motto is it can always be worse, so were just grateful for how well she’s doing and just keep working with her so she’s able to maintain her strength as best as she can but want to do everything possible to try to make that happen.”

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Benefit to aid Omaha girl

March 20, 2011

Benefit to aid Omaha girl

Omaha World-Herald | March 20, 2011 | By Rick Ruggles

Jen Peters has treated babies as a registered nurse for seven years, but she had never heard of the disease with which her baby daughter was diagnosed.

The disease is spinal muscular atrophy, and it is deadly.

A benefit for Ella Peters, who is close to 15 months old, will take place March 27 from noon to 5 p.m. at St. Bernadette Church, 7600 S. 42nd St.

Ella’s muscle weakness caused her mother and physician to wonder if she suffered an underlying problem. Ella’s mother received the results of a blood test on Jan. 3.

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Loving Wyatt to the end

December 19, 2010

Loving Wyatt to the end

Omaha World-Herald | December 19, 2010 | By Rick Ruggles

Wyatt Arnold swept into this world with a sweet smile and a disease that gave him precious little time.

His parents vowed to make his short life as happy as possible.¬†Wyatt sat on Santa’s lap, viewed the world on horseback and rode on a four-wheel all-terrain vehicle. He gazed at Christmas tree lights, stared a giraffe in the face and petted a penguin.

Wyatt died last Sunday at 5 months of age of spinal muscular atrophy, also known as SMA. Although it’s rare, the disorder typically is described as the leading genetic, or inherited, killer of children younger than 2.

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Help the girl in the purple wheelchair, hurry

December 8, 2010

Help the girl in the purple wheelchair, hurry

Lincoln Journal Star | December 8, 2010 | By Cindy Lange-Kubick

Alyssa Miller has a purple wheelchair with her name embroidered across the seatback.

Her first choice would have been pink, her favorite color, but they didn’t have a pink chair when she needed one, so the Arnold Elementary first-grader settled for purple.

Which is her mom’s favorite color, by the way.

And also, by the way, Alyssa talks fast when she’s done being shy.

She moves fast on those battery-powered purple wheels, too.But when she wants to go somewhere in her parents’ pickup, she has to slow down.

Click HERE or on the image below to read more…