Donated van to help family
Beloit Daily News | May 27, 2011 | By Rob Baxter
Listen closely and you’ll hear Keyonah (pronounced Key-on-uh) Spencer, 4, utter the words “Ace” and “Goodwill.” Her mom, Jenni Spencer, says those are her two favorite stores to go to in Beloit.
For many families, a trip to Ace to get flowering plants or a new tool or a rummage sale type, treasure hunt at Goodwill takes only minutes. For Keyonah, it’s a bit more daunting.
Keyonah was diagnosed with Spinal Muscular Atrophy with respiratory distress when she was 3 months old.. At 9 months, she was placed on a ventilator to save her life. Due to the degenerative nature of the disease, Keyonah is confined to a wheelchair and unable to hold her head up without support. Her muscles are so weak she cannot breath on her own.
“She is getting really big for my car and getting her in and out of there has become very difficult,” Jenni said. “This vehicle will allow us to do that. I don’t know if we would be able to go anywhere otherwise.”
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