March 24, 2011
Mya’s brave walk for friend
The Border Mail | March 24, 2011
A FRIENDSHIP forged through hardship is the driving force behind a seven-year-old cerebral palsy sufferer’s plan to walk Dean Street.
Albury’s Mya Irving is hoping people will sponsor the eight-block walk next month in a bid to raise the $35,000 needed to modify a car to take an electric wheelchair for her friend Rajah Sutherland, 5.
Rajah suffers from spinal muscular atrophy, a condition that weakens the spine and muscles and forces her to rely on a wheelchair.
The pair met through a disability support service and hydrotherapy.
Without the modified car her Jindera mother Ellen Sutherland is largely housebound.
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Posted by stronwi
March 24, 2011
Malvern Blooms 2011 Will Benefit Sweet Baby Zane, Families of Spinal Muscular Atrophy
MalvernPatch | March 24, 2011 | By Pete Kennedy
A portion of proceeds from this year’s Malvern Blooms Festival will be donated to Families of Spinal Muscular Atrophy, who will use the money to purchase car seats for children with the disease.
The donation will be facilitated by Sweet Baby Zane, a Malvern-based group founded in memory of Zane Schmid, who succumbed to type I SMA at just five months old. Her twin sister, Avery, does not carry the SMA gene.
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Posted by stronwi
March 9, 2011
Cheeky Charlie Bolton less than £4,000 away from life changing wheelchair
News Shopper | March 9, 2011 | By Michael Purton
THE parents of a 17-month-old disabled boy are less than £4,000 away from raising enough money to buy him a powered wheelchair.
Charlie Bolton, of Haydens Close, Orpington, has spinal muscular atrophy type two, and cannot crawl, kneel, stand, walk or sit up from a lying position.
His parents Aimee Spiers and Edward Bolton are trying to raise £18,000 to buy him an electric wheelchair, which is currently not available on the NHS.
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Posted by stronwi
February 16, 2011
Boy has group to thank for ‘souped-up’ wheelchair
The Shawnee Dispatch | February 16, 2011 | By Stephen Montemayor
It’s just after 6:30 Thursday morning and Sam Rice rides his wheelchair into a Merriam Krispy Kreme shop. With an entourage at least seven deep, the Benninghoven third grader is met with much celebrity.
He’s handed a heart-shaped doughnut on the house. He’d call it his favorite part of the morning, but his expression when chatting with a Kansas City Chiefs cheerleader suggested otherwise.
Joined by his parents, three brothers, a friend and his friend’s sister, Sam is up earlier than most of his classmates to celebrate Young Variety Kansas City’s one-year anniversary as part of its “Reverse Happy Hour.” Months earlier, the charity organization raised enough money to cover $30,000 in additions to his wheelchair that insurance wouldn’t cover.
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Posted by stronwi
February 10, 2011
Electric wheelchair appeal for 16-month-old disabled Orpington boy
News Shopper | February 10, 2011 | By Michael Purton
THE parents of a 16 month old disabled boy are appealing for donations for a powered wheelchair so he can move around independently.
Charlie Bolton from Orpington was diagnosed with spinal muscular atrophy type two at 12 months old, and the condition has left him unable to crawl, kneel, stand, walk or sit up from a lying position.
His parents Aimee Spiers and Edward Bolton want him to have an electric wheelchair, but have been told by the NHS one is not likely to be available until he is five years old.
So they have started a campaign to raise the £18,000 needed for the wheelchair, which they say will allow him to “interact and socialise with his peers and have some independence”.
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Posted by stronwi
January 28, 2011
Family turns grief into a gift for toddler
Global | January 28, 2011 | By Linda Hoang
Click HERE for the video.
When Kaitlyn Harapchuk was three months old, she was diagnosed with spinal muscular atrophy, a disease that affects muscle movement.
Doctors told Kaitlyn’s mother Hali that she probably wouldn’t live to be a year old. But Hali wouldn’t accept it.
“There’s always miracles,” she said.
Hali found special doctors and support groups that could help her daughter live well past the one year benchmark she had originally been given.
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Posted by stronwi
January 20, 2011
Lions help Tait sleep tight
The Northern Rivers Echo | January 21, 2011 | By Mel Carrero
The Jenkins family will finally be able to rest easy after Lions donated a bed worth $15,500 to them on Monday.
Tait Jenkins, a 14-year old boy from Modanville, suffers from spinal muscular atrophy (SMA) and has no function of his muscles from the neck down and requires to be turned each hour during sleep, leaving his parents Fiona and Royce incredibly tired and Tait very dependent on their help.
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December 20, 2010
Six-year-old remains active despite Spinal Muscular Atrophy diagnosis
Quad-Cities Online | December 18, 2010 | By Laura Anderson
Ella Christopher sat at her kitchen table, scribbling a crayon back and forth on a coloring book page.
“This is what we do every day after school,” said her mother, Amy Christopher.
Things are a little better now for the Eldridge family, but they aren’t easy. Ella, 6, was diagnosed with Spinal Muscular Atrophy, type 2, when she was 14-months-old.
Spinal Muscular Atrophy is a progressive, neuro-muscular disease that causes progressive weakness, Ms. Christopher said. “She basically atrophies.”
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Posted by stronwi
December 17, 2010
Ajax student uses webcam to join peers in classroom
DurhamRegion.com | December 17, 2010 | By REKA SZEKELY
AJAX — Like any other Grade 1 student, Tristen Moses gets excited about going to school.
But instead of a traditional classroom, Tristen logs on via webcam from his living room where he can see his classmates at Bolton C. Falby Public School and his classmates can see him.
It’s all part of an innovative program created by Tristen’s teachers and the Durham District School Board and a team at the Grandview Children’s Centre.
Tristen has spinal muscular atrophy and was diagnosed with the condition when he was just 17 months old.
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December 8, 2010
Help the girl in the purple wheelchair, hurry
Lincoln Journal Star | December 8, 2010 | By Cindy Lange-Kubick
Alyssa Miller has a purple wheelchair with her name embroidered across the seatback.
Her first choice would have been pink, her favorite color, but they didn’t have a pink chair when she needed one, so the Arnold Elementary first-grader settled for purple.
Which is her mom’s favorite color, by the way.
And also, by the way, Alyssa talks fast when she’s done being shy.
She moves fast on those battery-powered purple wheels, too.But when she wants to go somewhere in her parents’ pickup, she has to slow down.
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Posted by stronwi
SMAHeadlines.com 