FSMA Press Release | December 10, 2010
Since our last update in June, SMA Families have organized 135 fundraising events raising almost $1,170,000 for the important research and critical family support programs that Families of SMA carries out. The stunning list of events shown below shows the amazing strength in numbers that the SMA community has.
Click HERE or on the image below to read more…
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Most Innovative SME Award, 2010
Medical News TODAY | December 3, 2010
EuropaBio’s first ever Most Innovative European Biotech SME Award has attracted an outstanding array of applications from 32 companies across 12 countries representing all sectors of the biotech industry.
With such stiff competition, the panel of judges faced a tough task to identify the top five entries from which the overall winner will be announced at EuropaBio’s event on the Role of Biotechnology in Europe’s Responsible Innovation, in Brussels on 9 December. The winning applicant will receive a prize of 10,000 euros as well as two year’s free membership of EuropaBio.
Click HERE or on the image below to read more…
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Celebrities Head Up the Battle to Fight Childhood Disease Spinal Muscular Atrophy
Press Release | November 21, 2010
Multi-award winning actress Keira Knightley and actor/director David Morrissey have become Patrons of the SMA Trust, a charity dedicated to finding a cure for Spinal Muscular Atrophy (SMA).
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Kids Wish Network Grants Louisiana Boy’s Only Wish to Visit Disney World
Press Release | November 18, 2010
A boy suffering from spinal muscular atrophy has his wish to visit the Florida theme parks granted through national children’s charity Kids Wish Network.
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Multiple Presentations on Spinal Muscular Atrophy at The 2010 Society for Neuroscience Meeting
FSMA Release | November 18, 2010
The 40th Annual Society of Neuroscience Meeting was held November 13 to 17, 2010 in San Diego, California. Over 31,000 neuroscientists were in attendance to hear about the latest developments in the field. The meeting included several dozen presentations on Spinal Muscular Atrophy.
About 30 presentations were given on SMA at the 2010 Society of Neuroscience Meeting, on both basic and drug development research. In the basic research area, talks were given by many of the leading labs in the field.
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FSMA Launches Next Phase of Drug Development Efforts for SMA
FSMA Release | November 11, 2010
Families of SMA (FSMA) announces Request for Proposals (RFP) for new drug programs to develop therapies for Spinal Muscular Atrophy. FSMA has made significant progress in advancing new therapies for SMA, starting with funding the first ever SMA drug program in 2000. The organization is now launching the next phase of therapeutic development work for SMA. FSMA is aiming to fund two new preclinical drug development programs in 2011, with more to follow. These multi-million dollar collaborations will focus on innovative methods of developing novel therapies for SMA, including both biologic and small molecule approaches. These programs will be multi-year in scope with a typical duration of three years. The requested proposals will be reviewed by the FSMA Translational Advisory Committee next spring.
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