Daily Star | December 21, 2010
HEALTHY newborn Rosie Mae is a Christmas miracle for her mum and dad, who lost their first daughter two years ago.
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A Rosie Outlook
December 21, 2010
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New baby is precious gift from the little girl we lost
December 20, 2010New baby is precious gift from the little girl we lost
Leicester Mercury | December 20, 2010 | By Cathy Buss
A couple who lost their first daughter to a rare genetic condition are celebrating the arrival of their new baby.
Rosie Mae Whitfield, was delivered by Caesarian section at Leicester General Hospital.
Weighing 6lbs 9ozs, parents Mark and Siobhan, from Thurmaston, have described her as a “gift from Mollie” who died just after her first birthday two years ago.
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Leading disability campaigner opposes care charge price hikes
December 6, 2010Leading disability campaigner opposes care charge price hikes
Kingston Guardian | December 6, 2010 | By David Lindsell
One of the country’s leading equality and disability campaigners has added her voice to the criticism of Kingston Council’s care charge increases.
Charities have written to the leader of the council criticising the consultation on plans to charge disabled and elderly people more for help dressing, washing and preparing meals.
Baroness Campbell of Surbiton, who was given two years to live when she was born with spinal muscular atrophy, will be a difficult woman to ignore.
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Pedal Power Will Help Baby Unit
December 5, 2010Pedal Power Will Help Baby Unit
EDP24 | December 6, 2010 | By Annabelle Dickson
When she cuddles tiny baby Noah, it is a bittersweet moment for young mum Kimberley Bunn, who knows she can never take him home.
Kimberley Bunn Just moments after he was born, doctors noticed problems with his breathing, and he has since been diagnosed with a muscular disease which will confine him to hospital for most of his short life.
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Back brace promised for disabled Taunton girl
December 2, 2010Back brace promised for disabled Taunton girl
thisisthewestcountry.co.uk | December 2, 2010
HEALTH bosses have promised to urgently consider funding a vital back brace for a five-year-old disabled girl from Taunton after the County Gazette took up her case.
Alice Kemp has spinal muscular atrophy and needs a new back brace every time she outgrows her old one.
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Wheelchair Appeal For Brave Little Girl
November 27, 2010Wheelchair Appeal For Brave Little Girl
Selby Times | November 27, 2010
A WHITLEY family has launched a fund-raising campaign for their 29-month-old daughter who suffers from a rare genetic disease that means she will never walk, or even stand unsupported.
Little Beatrice Howden has type two Spinal Muscular Atrophy, a condition that stops signals from the brain getting to the muscles, causing them to become weak and wasted.
Children with type two SMA can usually sit unsupported but can’t stand or walk. A child can be affected only if both parents carry a faulty gene.
“It has been very hard coming to terms with the fact Beatrice will never walk and could have other problems, such as breathing difficulties,” said dad Andrew. “But she seems to have compensated for this by being a particularly bright and cheerful child. She surprises us on a daily basis with the things she can do.”
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Disney Dream Comes True For Disabled Maghull Youngster
November 24, 2010Disney Dream Comes True For Disabled Maghull Youngster
Champion Newspapers | November 24, 2010 | By David Raven
A brave Maghull youngster who suffers from a life threatening illness was treated to a once-in-a-lifetime dream trip to Disney World.
Five-year-old Ryan Noble met his cartoon heroes as he joined 24 other children on the enchanting trip to Florida.
The brave youngster suffers from a degenerative muscle wasting condition. He was diagnosed at just two-years-old with Spinal Muscular Atrophy.
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Celebrities Head Up the Battle to Fight Childhood Disease Spinal Muscular Atrophy
November 21, 2010Celebrities Head Up the Battle to Fight Childhood Disease Spinal Muscular Atrophy
Press Release | November 21, 2010
Multi-award winning actress Keira Knightley and actor/director David Morrissey have become Patrons of the SMA Trust, a charity dedicated to finding a cure for Spinal Muscular Atrophy (SMA).
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Royals Tour Motor Neuron Institute
November 20, 2010Royals Tour Motor Neuron Institute
Bedford Today | November 20, 2010
The Queen and Duke of Edinburgh have toured a £12 million motor neurone disease (MND) research centre in Sheffield.
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SMAHeadlines.com 