April 1, 2011
Bridge Run: For some, finishing the race is symbolic of overcoming other obstacles in life
The Post and Courier | April 1, 2011 | By David Quick
They come from near and far. This pilgrimage is not for food, or fashion, or history, or art.
During this annual rite of spring since 1978, some tackle this obstacle of steep concrete to prove they have overcome their own obstacles.
Obesity. Cancer. An organ transplant. The loss of a loved one. The loss of a job. The loss of a limb.
They converge on a mission: to finish.
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April 1, 2011
Ranger family seeks treatment for Spinal Muscular Atrophy
The Bayonet | March 30, 2011 | By Cheryl Rodewig
FORT BENNING, Ga. – Ever heard of Spinal Muscular Atrophy?
Neither had Staff Sgt. Kanaan and Kari Merriken a little more than a year ago.
Their son, Caleb, was born June 3, 2008 – “the best day of my life,” Kari said.
“The first few months of his life were relatively normal,” she said. “He rolled over at 12 weeks. He was able to sit up at 5 months. He crawled at 8-and-a-half months.”
But when he wasn’t walking at the 16-month mark, his doctor was concerned.
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March 30, 2011
This gang is ready to Walk and Roll
The Charlotte Observer | March 31, 2011 | By Jessica Milicevic
Michael Gray Dougherty, known to friends and family as Gray, is a happy, independent 12-year-old boy.
He likes to play chess and Xbox, and he competes on the National Academic League team at Alexander Graham Middle School. He lives in Sharon Woods with his mom, Abbie, dad, Mike, and 8-year-old brother, Riley.
Gray also has a rare muscular disease: Spinal Muscular Atrophy. Diagnosed when he was 10 months old, Gray has limited voluntary muscle movement and has been in a power wheelchair since he was 2. Every five years, Gray graduates to a new wheelchair to fit his changing needs and size.
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March 28, 2011
Bark in the Park charity effort launched in aid of baby Matthew Chad
Evening Gazette | March 28, 2011 | By Lindsey Mussett
FOUR-LEGGED friends are taking the lead in raising vital cash for a children’s hospice in memory of a tot who spent time there before he died.
Butterwick House Children’s Hospice, in Stockton, launched its brand-new Bark in the Park event – a sponsored walk with a difference – as part of the new Matthew’s Memory Appeal.
Pooches of all shapes and sizes will take a three-mile walk in memory of baby Matthew Chad, who was cared for at the hospice before he died at just three months old in September 2004, after being diagnosed with spinal muscular atrophy.
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March 24, 2011
Mya’s brave walk for friend
The Border Mail | March 24, 2011
A FRIENDSHIP forged through hardship is the driving force behind a seven-year-old cerebral palsy sufferer’s plan to walk Dean Street.
Albury’s Mya Irving is hoping people will sponsor the eight-block walk next month in a bid to raise the $35,000 needed to modify a car to take an electric wheelchair for her friend Rajah Sutherland, 5.
Rajah suffers from spinal muscular atrophy, a condition that weakens the spine and muscles and forces her to rely on a wheelchair.
The pair met through a disability support service and hydrotherapy.
Without the modified car her Jindera mother Ellen Sutherland is largely housebound.
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March 24, 2011
Party With A Purpose To Help Andrew Fight SMA
The 2nd Annual Party With a Purpose to help Andrew Creighton and FightSMA (Spinal Muscular Atrophy) Mechanicsville will be held from 7 to 11:30 p.m. Friday, April 8, at Plant Zero at Zero E. 4th St. in Richmond.
Each person is asked to raise a suggested $100 to help continue the fight against Spinal Muscular Atrophy.
Party-goers will enjoy an evening filled with cuisine from White House Catering, beverages, dancing, a silent auction and raffle.
Entertainment is being provided and donated by Mechanicsville DJ, Bill “Everyday” Holliday.
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March 24, 2011
Malvern Blooms 2011 Will Benefit Sweet Baby Zane, Families of Spinal Muscular Atrophy
MalvernPatch | March 24, 2011 | By Pete Kennedy
A portion of proceeds from this year’s Malvern Blooms Festival will be donated to Families of Spinal Muscular Atrophy, who will use the money to purchase car seats for children with the disease.
The donation will be facilitated by Sweet Baby Zane, a Malvern-based group founded in memory of Zane Schmid, who succumbed to type I SMA at just five months old. Her twin sister, Avery, does not carry the SMA gene.
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March 22, 2011
New foundation works to fund playground’s 2nd phase
The Orange County Register | March 21, 2011 | By Fred Swegles
A local foundation is trying to fund Phase 2 of Courtney’s SandCastle, a universally accessible playground that is under first-phase development in a city sports park being built on Avenida Vista Hermosa in San Clemente.
The City Council voted May 18 to build Phase 1, featuring play structures themed as a castle and a sailing ship designed to be accessible for all kids, including those with disabilities. The cost was $658,000.
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March 21, 2011
Family raising funds to help Maddison’s rare condition
this is nottingham | March 21, 2011 | By Dominic Howell
A MOTHER from East Leake is planning a birthday fun day to raise money for her daughter who is defying all medical expectations.
When doctors diagnosed Maddison Sherwood with a very rare muscular disease, which attacks her ability to breathe, they said she would never sit up unaided – but she has.
They said she would never be able to breathe for more than a minute without the aid of a ventilator – but she’s now managed 30 minutes without its help.
“Doctors just can’t work it out,” said mum Lidia Sherwood, of St Mary’s Crescent.
“She’s doing so well and I’m so proud.”
Maddison was diagnosed with spinal muscular atrophy with respiratory distress (SMARD) when she was born and spent the first 11 months of her life in the Queen’s Medical Centre.
There have only been two other recorded cases of SMARD in England and just 60 worldwide.
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March 20, 2011
Benefit to aid Omaha girl
Omaha World-Herald | March 20, 2011 | By Rick Ruggles
Jen Peters has treated babies as a registered nurse for seven years, but she had never heard of the disease with which her baby daughter was diagnosed.
The disease is spinal muscular atrophy, and it is deadly.
A benefit for Ella Peters, who is close to 15 months old, will take place March 27 from noon to 5 p.m. at St. Bernadette Church, 7600 S. 42nd St.
Ella’s muscle weakness caused her mother and physician to wonder if she suffered an underlying problem. Ella’s mother received the results of a blood test on Jan. 3.
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